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2025 World Brain Tumor Day Joint Press Conference: Innovate, Support; Advancing brain Health For All

To commemorate World Brain Tumor Day 2025, Brain and Spine Foundation Africa, in partnership with the National Hospital Abuja, held a joint press conference on June 8, 2025, at the Conference Hall of the National Hospital. The event featured notable stakeholders including Dr. Uthman Uthman, a neurosurgeon at the National Hospital who spoke on behalf of Senior Consultant Neurosurgeon Dr. Mansur Idris, and Ekeinyi Adedayo, a senior oncology nurse. Representatives from major media organizations such as the Nigeria Television Authority (NTA), Africa Independent Television (AIT), Federal Radio Corporation of Nigeria (FRCN), News Agency of Nigeria (NAN), The SUN, and The Nation Newspaper were also in attendance.

Executive Director of Brain and Spine Foundation Africa, Chika Okwuolisa said brain tumour and neurological diseases had become a silent national crisis.

“Brain tumour is in a world of its own. Without information, patients are disempowered and caregivers are helpless. Our healthcare system is not yet designed to accommodate the financial and emotional weight that these conditions impose on families,” she said.

She recounted her own experience supporting her sister’s treatment and how she had to beg from house to house to raise funds. “I have lived through the nightmare. It was like walking through death itself. That’s why we need the government to step in. This should not be a private struggle.”

She called for a national brain health policy that will scale up public education, expand access to diagnosis, train more neuro-specialists and equip hospitals with advanced neurosurgical tools.

“Brain health must be brought to the centre of national health planning just like cancer. These are equally devastating diseases. Brain health can no longer be sidelined. It is a public health emergency that demands urgent and sustained intervention from the government, health institutions, and society at large.

“It’s time we stop treating brain health as a luxury. It is a right, and this meeting is our way of saying enough is enough,” Okwuolisa said.

Dr. Uthman Uthman, a neurosurgeon at the National Hospital, who spoke on behalf of Senior Consultant Neurosurgeon, Dr. Mansur Idris, in his keynote address, titled, ‘Hope in the Midst of Tumour: Advances in Care and Survivorship,’ revealed that brain tumours account for up to 25 percent of all neurosurgical cases in Nigeria, cutting across all age groups.

He warned that the growing burden remains underreported due to cultural misconceptions and limited diagnostic access. “Many Nigerians associate seizures or behavioural changes with spiritual attacks. Some cases are discovered only by chance during scans for unrelated issues,” he said.
He noted that early diagnosis is critical but often missed because of low public awareness and limited access to advanced imaging tools like Magnetic Resonance Imaging (MRI).

While applauding the recent launch of high-end facilities such as the African Medical Centre of Excellence (AMCE) in Abuja, which now hosts advanced diagnostic tools like Tesla MRIs and Positron Emission Tomography (PET) scans, Dr. Uthman warned that these services remain financially inaccessible to most Nigerians.

“Diagnosis is crucial, but it is expensive. Even when part of the cost is covered by insurance, the remaining expenses often overwhelm families. Treatment involves more than just surgery. It includes radiology, pathology, oncology and in many cases, lifelong follow-up,” he said.

A senior oncology nurse at the National Hospital, Ekeinyi Adedayo, in an awareness talk advised Nigerians to be alert to lifestyle risks and early signs of brain tumours, particularly persistent headaches that don’t respond to treatment. “Regular check-ups and prompt medical attention can make all the difference. Prevention and early diagnosis are key,” she said.

The event also featured testimonies from survivors and caregivers. 

Stephanie Acka, who has cared for her sister Jessica since her diagnosis in 2021, described the immense emotional and financial burden her family has endured. 

She recounted how public donations helped them raise over ₦10 million for surgery in India, but the financial pressure did not end there. 

According to her, post-surgery treatment includes medications and radiation therapy, with just one injection costing N1.2 million every month for six months. 

“Even for wealthy families, this is a huge cost. I’ve turned into a beggar just to keep my sister alive,” she said. 

 

2023 BRAIN AND SPINAL INJURY CONFERENCE

Brain and Spinal Cord Injury Prevention on Nigerian Roads, Public Awareness and Emergency Rescue.

The Brain and Spine Foundation Africa in collaboration with the Federal Road Safety Corps on the 29th of November 2023, organized a brain and spinal injury conference at the Exclusive Serene Hotel, Abuja. Organizations represented include; the National Union of Road Transport Workers(NURTW), Nigeria Navy, Directorate of Road Traffic Services(DRTS), Nigeria Security and Civil Defense Corps(NSCDC), United Nations, Nigeria Police Force(NPF), Federal Ministry of Health and Social Welfare(FMOH) among others. The theme of the conference was “Brain & Spinal Cord Injury Prevention on Nigerian Roads, Public Awareness & Emergency Rescue.”

 

The executive director, Engr. Chika Okwuolisa in her keynote address said the theme of the conference encapsulated the urgency and gravity of the issues that the conference intended to address. “In focusing on brains and spinal cord injury prevention and road safety, we acknowledged the inter-connectedness of our roads, our behaviors, and the precious lives we strive to protect. “We must know that brain and spinal cord injuries are not mere statistics. They are profound disruptions to lives, families, and communities. Behind each incident of brain and spinal injury is a narrative of pain, resilience, and the indomitable human spirit. It’s this narrative that pushes us to find innovative solutions, foster awareness, and fortify our emergency response mechanisms.”

 

She maintained that survivors, through their unwavering courage and persistent demands, have become the driving force behind the commitment to address the issue of neurological emergencies. “Their voice, echoing with pain and resilience, have resounded in our hearts, compelling us to action. She added that the Brain and Spine Foundation Africa was founded to create public awareness of brain and spinal conditions and inform educate, support, and advocate for people affected by these conditions in sub-Saharan African countries.

The FRSC Corp Marshal, Dauda Biu, who was represented by Dr. Davidson Okuobeya, in his address, said that FRSC as a lead Agency in road traffic administration and safety management activities places a great premium on the sanctity of human life and the need to protect same through legislations aimed at preventing avoidable carnages on the nation’s highways.

 

He said the mandate of FRSC is anchored on the vision to eradicate road traffic crashes and create a safe motoring environment in Nigeria through sustained public enlightenment; promotion of stakeholder cooperation; robust data management; improved motor vehicle administration; prompt rescue services; and effective patrol operation, among others.

 

He, however, admitted that combating the scourge of brain and spinal cord injury requires a multi-sectoral approach, stressing that FRSC welcomes such synergy and collaborations with the Brain & Spine Foundation Africa, in reawakening the consciousness of Nigerians on the disastrous implications of brain and spine injuries not only to the victims who have been reduced to a state of permanent incapacitation but to their immediate families for the stresses of caregiving; and the nation for the huge economic cost in terms of medical tourism abroad.

 

He said in a bid to achieve its mission and mandate of zero tolerance to road traffic crashes with their fatal consequences, the Corps established 60 Zebra Points under its Emergency Ambulance Services; established 30 road traffic crash clinics/help areas; established 25 medical centers across the country; established call centers with 122 Toll-Free Number through which the Corps respond to all emergency situations including casualties, women in labor, bomb blast victims and so on.

 

He added that the Corps also established a synergy and collaboration with the Federal Ministry of Health through the National Emergency Medical Services and Ambulance System(NEMSAS) to pilot the first National Ambulance Services in Nigeria with 12 Ambulances to support the modest take-off of the scheme, among several others advocacy and enlightenment interventions.”

A Consultant Neurosurgeon with the Federal Medical Center, Jabi, Abuja, Dr. Douglas Emeka Okor, called on Federal and State Governments to fix the country’s roads.

 

Dr. Okor said that a new culturally relevant and realistic strategy to improve the training and attitudes of Nigerian drivers is needed. He advised that every FRSC unit on the highway should have at least two individuals who were paramedics.

 

“Every FRSC unit in a particular locale must know the nearest health facilities and their capacity – from a geospatial point of view,” he said.

revealed that some primary preventions of road crashes include motorable roads, well-trained drivers, and efficient and Effective delivery of the statutory function of FRSC which is preventing road crashes.

 

He noted that secondary preventions include prompt attention to victims of road accidents, and the provision of mobile clinics on the highways to manage RTA victims at the scene, among others.

2024 BRAIN AWARENESS WEEK

Engr. Chika Okwuolisa, Founder and Executive Director of Brain and Spine Foundation Africa, told journalists in an interactive session at the organization’s Abuja office, that many lives have been cut short due to poor health care, hence the decision to take up the challenge to raise awareness, reduce stigma, advocate for resources, support research, empower communities, and foster partnership. She said that many brain and spine injury patients would enjoy lives again and contribute to the growth and development of Nigeria if they had gotten adequate attention, care and love they needed. She noted that every month of March, partners across the world commemorate Brain Awareness Week , to raise global awareness on the effect of Brain and Spinal cord challenges.

A brain tumour survivor, Mrs. Joy Kemakolam emphasized the need for increased awareness, particularly in rural areas where brain disorders are often mistaken for common illnesses like malaria. She recounted her own journey, highlighting the financial challenges she faced in accessing treatment and advocating for government intervention to support individuals with similar conditions.

Another survivor, Ms. Judith Akin- Moses,  said she  was diagnosed with a brain tumour at the age of six and underwent multiple surgeries both within and outside the country before surviving the ordeal. “It started with a headache at school and  was given pain relievers. Initially, my parents thought it was a minor issue, but it escalated, leading to a coma and another coma that lasted a month.  Afterward, I was diagnosed with a brain tumour and underwent multiple surgeries,” she said.  She was placed on treatment and medications after the surgeries to manage the condition. She stressed the need for financial support and increased awareness in communities and schools to educate teachers and parents on the dangers of attributing every headache to malaria. 

The mother of a brain injury survivor, Mrs. Patricia Okoro revealed the financial strain her family has endured since her son’s accident three years ago. Mrs.  Okoro appealed for assistance from the government and large corporations to aid individuals coping with brain tumors and injuries.

The keynote speaker, Dr. Benneth Ikem Ilechukwu, Head, Physiotherapy Department, State House Clinic, Abuja, stressed the role of rehabilitation in aiding recovery and optimising functional abilities following a brain injury. He outlined different therapies for proper recovery of victims of brain and spinal cord injuries. These therapies include physical therapy to improve mobility, occupational therapy to regain daily living skills, speech and language therapy to address communication difficulties, cognitive rehabilitation to enhance cognitive functions, and psychological therapy to manage emotional and behavioural issues.